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Tinnitus isn`t taken seriously says Middlesbrough woman

Released on: June 9, 2008, 5:08 am

Press Release Author: BeyondPR

Industry: Healthcare

Press Release Summary: Pam Allen of Middlesbrough, has lived with tinnitus for 12 years and on a `good’ day she hears a continuous hissing sound in both ears.

Press Release Body: Pam Allen of Middlesbrough, has lived with tinnitus for 12 years and on a `good’ day she hears a continuous hissing sound in both ears. On a bad day, the noises can resemble bells and bagpipes and she has even been known to get up at night to answer a telephone that hasn’t been ringing. She has had no choice but to adapt her lifestyle to cope with the constant intrusions and feels she has received very little support from the medical profession.

When she first became aware of the noises, Pam understandably hoped they’d go away and put off seeking medical help for several years, especially after reading that no cure was available. When she eventually mentioned it to her GP at the time, she got an unsympathetic response. “He just laughed and advised me to play a radio quietly as a distraction to help me get to sleep at night. But it wasn’t exactly practical considering my husband works shifts,” she explains.

Pam, however, 56, has gradually found ways to manage each day but still wishes she could wake up one morning to the long-forgotten sound of silence.

“There are some things I don’t do anymore such as going to the pictures because I can’t concentrate on watching a film. I need to have the TV volume louder than normal and can’t always hear it properly even then. I also know that people sometimes think I’m rude because I haven’t realised what they’re saying or kept up with the conversation.” Tinnitus also affects Pam’s balance especially at night and intensifies if she has a cold or is under stress.

She often feels quite isolated and admits to getting depressed sometimes. “It’s very difficult for people to understand because there’s nothing to see, so it isn’t really taken seriously. Although I’m not deaf as such, I do mishear things because the tinnitus often overrides normal sounds.” Consequently, Pam has become quite adept at lip-reading and has also found other ways to compensate for her distorted hearing. In her job as a learning resource assistant at her local college, she makes a particular effort to recognise the faces of new students so she can quickly match them to the photographs on their identity cards rather than having to ask their names. She still has the odd misunderstanding, but tries to see the funny side.

“I won’t let it beat me and you do tend to find ways of getting round the problem,” she says. “It’s not as frightening as it was at first when I didn’t know what I was dealing with, but I do think more awareness among the public and health professionals is needed. A good experiment would be to see the reaction of people if the sounds of tinnitus were reproduced and played constantly to them for a day. If people could experience it for themselves, they’d have a better understanding of what it’s like and why more support is needed,” she adds.

Deafness Research UK is the country's only charity dedicated to finding new cures, treatments and technologies for the deaf, hard of hearing and other hearing impaired people including tinnitus sufferers. Vivienne Michael, Chief Executive of Deafness Research UK, said: “Around five million people in the UK are affected by tinnitus and it can have a devastating effect on their quality of life. Not enough is known about this very complex condition and we are determined to do something about it. We are committed to funding leading edge research and providing practical information to health professionals for the benefit of sufferers,” she added.

Where tinnitus symptoms are continuous or troublesome, Deafness Research UK’s Information Service recommends that medical help be sought. Your GP should be able to refer you to your local hospital to get specialist help. Whilst a cure as such is not available, various treatments are available on the NHS.

‘Deafness Research UK has produced a useful guide called ‘Managing Tinnitus’. To receive a copy telephone 0808 808 2222 or email info@deafnessresearch.org.uk. For information on research into deafness and other hearing conditions, log on to the
website, www.deafnessresearch.org.uk


About Deafness Research UK
• Deafness Research UK is the country’s only charity dedicated to finding new cures, treatments and technologies for deaf, hard of hearing and other hearing impaired people.
• The charity supports high quality medical research into the prevention, diagnosis and treatment of all forms of hearing impairment including tinnitus.
• The Deafness Research UK Information Service provides free information and advice based on the latest scientific evidence and informed by leading experts. The Information Service can be contacted on Freephone 0808 808 2222
• Deafness Research UK was founded in 1985 by Lord and Lady Ashley of Stoke.
• For more information on research into deafness, tinnitus and other hearing conditions, log on to the website at www.deafnessresearch.org.uk where you can access a wide range of information. Alternatively you can e-mail Deafness Research UK at info@deafnessresearch.org.uk
• One in seven people in the UK – almost nine million people - suffer hearing loss.



Web Site: http://www.beyondpr.co.uk

Contact Details: Press enquiries
Jon Gardner, BeyondPR. Direct line 0114 275 6996. Mobile 07930 697773. e-mail:
jon.gardner@beyondpr.co.uk
Ref: DRUK0047 - Pam Allen

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